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@ARTICLE{Dillen:1007671,
      author       = {Dillen, Kim and Goereci, Yasemin and Dunkl, Veronika and
                      Müller, Anne and Fink, Gereon R. and Voltz, Raymond and
                      Hocaoglu, Mevhibe and Warnke, Clemens and Golla, Heidrun},
      title        = {{C}ultural adaptation of the {I}ntegrated {P}alliative care
                      {O}utcome {S}cale for neurological symptoms},
      journal      = {Palliative $\&$ supportive care},
      volume       = {21},
      number       = {6},
      issn         = {1478-9515},
      address      = {Cambridge [u.a.]},
      publisher    = {Cambridge Univ. Press},
      reportid     = {FZJ-2023-02154},
      pages        = {1 - 10},
      year         = {2023},
      abstract     = {AbstractObjectives: Standardized measures for assessing
                      neurological patients needing palliative care remain scarce.
                      The Integrated Palliative care Outcome Scale for
                      neurological patients in its short form (IPOS Neuro-S8)
                      helps assess and identify patients' symptom burden and needs
                      early but has not yet been validated in German. The aim was
                      to culturally adapt and translate the IPOS Neuro-S8 into the
                      German health-care context and evaluate its face and content
                      validity.Methods: Cultural adaptation study following the
                      first 6 out of 8 phases of the Palliative care Outcome Scale
                      measures manual: (1) conceptual definition, (2) forward
                      translation to German, (3) backward translation to English,
                      (4) expert review, (5) cognitive debriefing, (6)
                      proofreading. Neurological patients needing palliative care
                      and clinical staff of the Department of Palliative Medicine
                      or Neurology of the University Hospital of Cologne were
                      included. Data were analyzed using thematic content analysis
                      and descriptive statistics.Results: A total of 13 patients
                      and 16 clinical staff participated in this study. The expert
                      review panel (phase 4) consisted of 11 additional members.
                      While patients (n = 9) and clinical staff (n = 11) confirmed
                      that the IPOS Neuro-S8 is an intelligible tool that is well
                      accepted (phase 5), some linguistic and cultural differences
                      were found between the original English and German versions.
                      These mainly concerned the items mouth problems and
                      spasms.Significance of results: The German version of the
                      IPOS Neuro-S8 has demonstrated face and content validity and
                      captures relevant symptoms of neurological patients needing
                      palliative care. Its psychometric properties, including
                      construct and criterion validity, will be investigated
                      next.Keywords: Cognitive interviewing; Cultural adaptation;
                      German; Neurological patients needing palliative care;
                      Patient-related measure.},
      cin          = {INM-3},
      ddc          = {610},
      cid          = {I:(DE-Juel1)INM-3-20090406},
      pnm          = {5251 - Multilevel Brain Organization and Variability
                      (POF4-525)},
      pid          = {G:(DE-HGF)POF4-5251},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {37039454},
      UT           = {WOS:000969361700001},
      doi          = {10.1017/S1478951523000238},
      url          = {https://juser.fz-juelich.de/record/1007671},
}