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001032447 0247_ $$2ISSN$$a1877-718X
001032447 0247_ $$2datacite_doi$$a10.34734/FZJ-2024-06253
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001032447 1001_ $$0P:(DE-HGF)0$$aStopic, Vasilija$$b0$$eCorresponding author
001032447 245__ $$aValidation Study of the Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest)
001032447 260__ $$aAmsterdam$$bIOS Press$$c2024
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001032447 520__ $$aBackground: Stigma is a relevant aspect of Parkinson's disease (PD). Specific stigma tools are needed to address the complex construct of stigma in PD comprehensively.Objective: To test the dimensionality and psychometric properties of the newly developed Parkinson's Disease Stigma Questionnaire (PDStigmaQuest).Methods: In this multi-center, cross-sectional study including PD patients and healthy controls, the dimensionality of the PDStigmaQuest was examined through exploratory factor analysis. Acceptability and psychometric properties were investigated. PDStigmaQuest scores of patients and healthy controls were compared.Results: In total, 201 PD patients and 101 healthy controls were included in the final analysis. Results suggested high data quality of the PDStigmaQuest (0.0001% missing data for patients). The exploratory factor analysis produced four factors: felt stigma, hiding, enacted stigma: rejection, and enacted stigma: patronization, explaining 47.9% of variance. An optional work domain for employed patients was included. Moderate floor effects and skewness, but no ceiling effects were found. Cronbach's alpha of 0.85 indicated high internal consistency. Calculated item-total correlations met standard criteria. Test-retest reliability was high (rs = 0.83). PDStigmaQuest scores correlated significantly with other stigma measures (rs = 0.56-0.69) and were significantly higher in patients than in healthy controls and higher in patients with depressive symptoms than in those without.Conclusions: The patient-reported 18-item PDStigmaQuest showed strong psychometric properties of validity and reliability. Our results suggest that the PDStigmaQuest can be used to assess and evaluate stigma comprehensively in PD, which will improve our understanding of the construct of PD stigma.Keywords: Stigma; quality of life; questionnaire; validation study.
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001032447 536__ $$0G:(GEPRIS)431549029$$aDFG project G:(GEPRIS)431549029 - SFB 1451: Schlüsselmechanismen normaler und krankheitsbedingt gestörter motorischer Kontrolle (431549029)$$c431549029$$x1
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001032447 7001_ $$0P:(DE-HGF)0$$aJost, Stefanie T.$$b1
001032447 7001_ $$0P:(DE-HGF)0$$aHaupt, Julius$$b2
001032447 7001_ $$0P:(DE-HGF)0$$aBrandt, Gregor A.$$b3
001032447 7001_ $$0P:(DE-HGF)0$$avan der Linden, Christina$$b4
001032447 7001_ $$0P:(DE-HGF)0$$aPetry-Schmelzer, Jan Niklas$$b5
001032447 7001_ $$0P:(DE-HGF)0$$aDembek, Till A.$$b6
001032447 7001_ $$0P:(DE-Juel1)131720$$aFink, Gereon R.$$b7$$ufzj
001032447 7001_ $$0P:(DE-HGF)0$$aBatzu, Lucia$$b8
001032447 7001_ $$0P:(DE-HGF)0$$aRizos, Alexandra$$b9
001032447 7001_ $$0P:(DE-HGF)0$$aChaudhuri, K. Ray$$b10
001032447 7001_ $$0P:(DE-HGF)0$$aDafsari, Haidar S.$$b11
001032447 7001_ $$0P:(DE-HGF)0$$aGruber, Doreen$$b12
001032447 7001_ $$0P:(DE-HGF)0$$aEbersbach, Georg$$b13
001032447 7001_ $$0P:(DE-HGF)0$$aKessler, Josef$$b14
001032447 7001_ $$0P:(DE-Juel1)131613$$aBarbe, Michael T.$$b15
001032447 7001_ $$0P:(DE-HGF)0$$aSauerbier, Anna$$b16
001032447 773__ $$0PERI:(DE-600)2599550-9$$a10.3233/JPD-240224$$gVol. 14, no. 7, p. 1469 - 1480$$n7$$p1469 - 1480$$tJournal of Parkinson's Disease$$v14$$x1877-7171$$y2024
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