% IMPORTANT: The following is UTF-8 encoded.  This means that in the presence
% of non-ASCII characters, it will not work with BibTeX 0.99 or older.
% Instead, you should use an up-to-date BibTeX implementation like “bibtex8” or
% “biber”.

@ARTICLE{Stopic:1032447,
      author       = {Stopic, Vasilija and Jost, Stefanie T. and Haupt, Julius
                      and Brandt, Gregor A. and van der Linden, Christina and
                      Petry-Schmelzer, Jan Niklas and Dembek, Till A. and Fink,
                      Gereon R. and Batzu, Lucia and Rizos, Alexandra and
                      Chaudhuri, K. Ray and Dafsari, Haidar S. and Gruber, Doreen
                      and Ebersbach, Georg and Kessler, Josef and Barbe, Michael
                      T. and Sauerbier, Anna},
      title        = {{V}alidation {S}tudy of the {P}arkinson’s {D}isease
                      {S}tigma {Q}uestionnaire ({PDS}tigma{Q}uest)},
      journal      = {Journal of Parkinson's Disease},
      volume       = {14},
      number       = {7},
      issn         = {1877-7171},
      address      = {Amsterdam},
      publisher    = {IOS Press},
      reportid     = {FZJ-2024-06253},
      pages        = {1469 - 1480},
      year         = {2024},
      abstract     = {Background: Stigma is a relevant aspect of Parkinson's
                      disease (PD). Specific stigma tools are needed to address
                      the complex construct of stigma in PD
                      comprehensively.Objective: To test the dimensionality and
                      psychometric properties of the newly developed Parkinson's
                      Disease Stigma Questionnaire (PDStigmaQuest).Methods: In
                      this multi-center, cross-sectional study including PD
                      patients and healthy controls, the dimensionality of the
                      PDStigmaQuest was examined through exploratory factor
                      analysis. Acceptability and psychometric properties were
                      investigated. PDStigmaQuest scores of patients and healthy
                      controls were compared.Results: In total, 201 PD patients
                      and 101 healthy controls were included in the final
                      analysis. Results suggested high data quality of the
                      PDStigmaQuest $(0.0001\%$ missing data for patients). The
                      exploratory factor analysis produced four factors: felt
                      stigma, hiding, enacted stigma: rejection, and enacted
                      stigma: patronization, explaining $47.9\%$ of variance. An
                      optional work domain for employed patients was included.
                      Moderate floor effects and skewness, but no ceiling effects
                      were found. Cronbach's alpha of 0.85 indicated high internal
                      consistency. Calculated item-total correlations met standard
                      criteria. Test-retest reliability was high (rs = 0.83).
                      PDStigmaQuest scores correlated significantly with other
                      stigma measures (rs = 0.56-0.69) and were significantly
                      higher in patients than in healthy controls and higher in
                      patients with depressive symptoms than in those
                      without.Conclusions: The patient-reported 18-item
                      PDStigmaQuest showed strong psychometric properties of
                      validity and reliability. Our results suggest that the
                      PDStigmaQuest can be used to assess and evaluate stigma
                      comprehensively in PD, which will improve our understanding
                      of the construct of PD stigma.Keywords: Stigma; quality of
                      life; questionnaire; validation study.},
      cin          = {INM-3},
      ddc          = {610},
      cid          = {I:(DE-Juel1)INM-3-20090406},
      pnm          = {5251 - Multilevel Brain Organization and Variability
                      (POF4-525) / DFG project G:(GEPRIS)431549029 - SFB 1451:
                      Schlüsselmechanismen normaler und krankheitsbedingt
                      gestörter motorischer Kontrolle (431549029)},
      pid          = {G:(DE-HGF)POF4-5251 / G:(GEPRIS)431549029},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {39331110},
      UT           = {WOS:001366896600012},
      doi          = {10.3233/JPD-240224},
      url          = {https://juser.fz-juelich.de/record/1032447},
}