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@ARTICLE{Golla:836860,
      author       = {Golla, Heidrun and Fink, Gereon Rudolf and Rolke, Roman and
                      Lorenzl, Stefan and Ebke, Markus and Montag, Thomas and
                      Gold, Ralf and Nelles, Gereon and Eggers, Carsten and Voltz,
                      Raymond},
      title        = {{P}alliativmedizinische {V}ersorgung neurologischer
                      {P}atienten. {P}alliative care for neurological patients.},
      journal      = {Aktuelle Neurologie},
      volume       = {44},
      number       = {06},
      issn         = {1438-9428},
      address      = {Stuttgart},
      publisher    = {Thieme},
      reportid     = {FZJ-2017-05896},
      pages        = {388 - 399},
      year         = {2017},
      abstract     = {Although patients with incurable neurological diseases
                      suffer from a variety of distressing symptoms and may die
                      from their neurological condition and associated
                      complications, palliative and hospice care for these
                      patients to date remains rare. First estimates envisage that
                      on average $10 \%$ of all patients suffering from a
                      neurological disease need palliative and hospice care.
                      However, within German neurology departments, only few
                      physicians (on average 1.3 /department) and nurses (on
                      average 2.2./department) are specialized in palliative and
                      hospice care and only about $3 \%$ of patients cared for
                      in palliative or hospice care structures suffer from
                      neurological diseases (in contrast to patients suffering
                      from oncological diseases, approximately $80 \%).$
                      Responsible for this rather low number is a just gradual
                      increase in the awareness of palliative and hospice care
                      needs for neurological patients and a currently predominant
                      supply of oncological patients in palliative and hospice
                      care structures which are primarily aimed at these patients.
                      In line with this is that the special aspects of
                      neurological patients are currently not adequately addressed
                      in the palliative training curricula of health care
                      professionals. Rather, patients with advanced neurological
                      conditions are medically cared for by general practitioners
                      and by the existing inpatient and outpatient neurological
                      structures, which may also offer sub-specialty services.
                      Consequently, adequate care for severely affected
                      neurological patients becomes difficult as soon as these
                      patients are hardly able to visit these structures since
                      home-based specialist treatment is currently only limitedly
                      carried out and financed. Novel yet to date rare approaches,
                      mostly of international origin, suggest that these patients
                      may benefit from specialized home based services, combining
                      neurological and palliative care expertise. At present, data
                      that characterize the situation of neuro-palliative care in
                      Germany remain scarce. In addition to the already known
                      supply gaps (e. g. low rate of neurologists trained in
                      palliative medicine as well as of nurses working in
                      neurology trained in palliative care, lacking consideration
                      of the specific (care) needs of neurological patients in
                      general and specialized palliative and hospice care
                      structures, hardly available home-based outpatient
                      specialists) research is a prerequisite to identify current
                      gaps in palliative care of neurological patients in more
                      detail and how these might be overcome in the future.},
      cin          = {INM-3},
      ddc          = {610},
      cid          = {I:(DE-Juel1)INM-3-20090406},
      pnm          = {572 - (Dys-)function and Plasticity (POF3-572)},
      pid          = {G:(DE-HGF)POF3-572},
      typ          = {PUB:(DE-HGF)16},
      UT           = {WOS:000407300300003},
      doi          = {10.1055/s-0043-108194},
      url          = {https://juser.fz-juelich.de/record/836860},
}