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@ARTICLE{Stake:909104,
      author       = {Stake, Mandy and Heinrichs, Bert},
      title        = {{E}thical {I}mplications of e-{H}ealth {A}pplications in
                      {E}arly {P}reventive {H}ealthcare},
      journal      = {Frontiers in genetics},
      volume       = {13},
      issn         = {1664-8021},
      address      = {Lausanne},
      publisher    = {Frontiers Media},
      reportid     = {FZJ-2022-03014},
      pages        = {902631},
      year         = {2022},
      abstract     = {As a means of preventive medicine early detection and
                      prevention examinations can identify and treat possible
                      health disorders or abnormalities from an early age onwards.
                      However, pediatric examinations are often widely spaced, and
                      thus only snapshots of the children's and adolescents'
                      developments are obtained. With e-health applications
                      parents and adolescents could record developmental
                      parameters much more frequently and regularly and transmit
                      data directly for ongoing evaluation. AI technologies could
                      be used to search for new and previously unknown patterns.
                      Although e-health applications could improve preventive
                      healthcare, there are serious concerns about the unlimited
                      use of big data in medicine. Such concerns range from
                      general skepticism about big data in medicine to specific
                      challenges and risks in certain medical areas. In this
                      paper, we will focus on preventive health care in pediatrics
                      and explore ethical implications of e-health applications.
                      Specifically, we will address opportunities and risks of
                      app-based data collection and AI-based data evaluation for
                      complementing established early detection and prevention
                      examinations. To this end, we will explore the principle of
                      the best interest of the child. Furthermore, we shall argue
                      that difficult trade-offs need to be made between group
                      benefit on the one hand and individual autonomy and privacy
                      on the other.},
      cin          = {INM-7},
      ddc          = {570},
      cid          = {I:(DE-Juel1)INM-7-20090406},
      pnm          = {5255 - Neuroethics and Ethics of Information (POF4-525)},
      pid          = {G:(DE-HGF)POF4-5255},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {35899190},
      UT           = {WOS:000830175800001},
      doi          = {10.3389/fgene.2022.902631},
      url          = {https://juser.fz-juelich.de/record/909104},
}