Preprint

FZJ-2023-04761

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Challenges for Achieving Responsible Data Governance in European Health Data Space

Kiseleva, A. ; Busch, C. ; Eke, D. ; Zehl, L.FZJ* ; Martens, M. ; Johansen, M. ; Kellmeyer, P. ; Rak, R. ; Knight, W.

2023
Zenodo

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Please use a persistent id in citations: doi:10.5281/zenodo.8320909  doi:10.5281/ZENODO.8320909  doi:10.34734/FZJ-2023-04761

Abstract: This brief highlights three challenges for achieving responsible data governance in the European Health Data Space. The challenges are 1) Engagement with and participation of stakeholders, 2) Rights, legitime interests and responsibilities, and 3) System security. This work is the outcome of an expert workshop hosted by Danish Board of Technology and De Montfort University under the Human Brain Project.

Keyword(s): Responsible Data Governance ; European Health Data Space

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Contributing Institute(s):

1. Strukturelle und funktionelle Organisation des Gehirns (INM-1)

Research Program(s):

1. 5251 - Multilevel Brain Organization and Variability (POF4-525) (POF4-525)
2. 5254 - Neuroscientific Data Analytics and AI (POF4-525) (POF4-525)
3. HBP SGA3 - Human Brain Project Specific Grant Agreement 3 (945539) (945539)

Appears in the scientific report 2023

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Database coverage:

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