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@ARTICLE{Kiseleva:1018376,
      author       = {Kiseleva, Anastasiya and Busch, Cecilie and Eke, Damian and
                      Zehl, Lyuba and Martens, Mia and Johansen, Michael and
                      Kellmeyer, Philipp and Rak, Richard and Knight, William},
      title        = {{C}hallenges for {A}chieving {R}esponsible {D}ata
                      {G}overnance in {E}uropean {H}ealth {D}ata {S}pace},
      journal      = {zenodo},
      publisher    = {Zenodo},
      reportid     = {FZJ-2023-04761},
      year         = {2023},
      abstract     = {This brief highlights three challenges for achieving
                      responsible data governance in the European Health Data
                      Space. The challenges are 1) Engagement with and
                      participation of stakeholders, 2) Rights, legitime interests
                      and responsibilities, and 3) System security. This work is
                      the outcome of an expert workshop hosted by Danish Board of
                      Technology and De Montfort University under the Human Brain
                      Project.},
      keywords     = {Responsible Data Governance (Other) / European Health Data
                      Space (Other)},
      cin          = {INM-1},
      cid          = {I:(DE-Juel1)INM-1-20090406},
      pnm          = {5251 - Multilevel Brain Organization and Variability
                      (POF4-525) / 5254 - Neuroscientific Data Analytics and AI
                      (POF4-525) / HBP SGA3 - Human Brain Project Specific Grant
                      Agreement 3 (945539)},
      pid          = {G:(DE-HGF)POF4-5251 / G:(DE-HGF)POF4-5254 /
                      G:(EU-Grant)945539},
      typ          = {PUB:(DE-HGF)25},
      doi          = {10.5281/zenodo.8320909},
      url          = {https://juser.fz-juelich.de/record/1018376},
}