%0 Journal Article
%A Heinrichs, Bert
%T Advance research directives: avoiding double standards
%J BMC medical ethics
%V 22
%N 137
%@ 1472-6939
%C London
%I BioMed Central
%M FZJ-2021-03896
%P  
%D 2021
%X Advance research directives (ARD) have been suggested as a means by which to facilitate research with incapacitated subjects, in particular in the context of dementia research. However, established disclosure requirements for study participation raise an ethical problem for the application of ARDs: While regular consent procedures call for detailed information on a specific study (“token disclosure”), ARDs can typically only include generic information (“type disclosure”). The introduction of ARDs could thus establish a double standard in the sense that within the context of ARDs, type disclosure would be considered sufficient, while beyond this context, token disclosure would remain necessary.
%F PUB:(DE-HGF)16
%9 Journal Article
%$ 34627232
%U <Go to ISI:>//WOS:000705226900001
%R 10.1186/s12910-021-00704-5
%U https://juser.fz-juelich.de/record/901908