Journal Article

FZJ-2021-03896

http://join2-wiki.gsi.de/foswiki/pub/Main/Artwork/join2_logo100x88.png Advance research directives: avoiding double standards

Heinrichs, B. (Corresponding author)FZJ*

2021
BioMed Central London

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Please use a persistent id in citations: http://hdl.handle.net/2128/28808  doi:10.1186/s12910-021-00704-5

Abstract: Advance research directives (ARD) have been suggested as a means by which to facilitate research with incapacitated subjects, in particular in the context of dementia research. However, established disclosure requirements for study participation raise an ethical problem for the application of ARDs: While regular consent procedures call for detailed information on a specific study (“token disclosure”), ARDs can typically only include generic information (“type disclosure”). The introduction of ARDs could thus establish a double standard in the sense that within the context of ARDs, type disclosure would be considered sufficient, while beyond this context, token disclosure would remain necessary.

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Contributing Institute(s):

1. Ethik in den Neurowissenschaften (INM-8)

Research Program(s):

1. 5255 - Neuroethics and Ethics of Information (POF4-525) (POF4-525)

Appears in the scientific report 2021

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