TY  - JOUR
AU  - Heinrichs, Bert
TI  - Advance research directives: avoiding double standards
JO  - BMC medical ethics
VL  - 22
IS  - 137
SN  - 1472-6939
CY  - London
PB  - BioMed Central
M1  - FZJ-2021-03896
SP  -  
PY  - 2021
AB  - Advance research directives (ARD) have been suggested as a means by which to facilitate research with incapacitated subjects, in particular in the context of dementia research. However, established disclosure requirements for study participation raise an ethical problem for the application of ARDs: While regular consent procedures call for detailed information on a specific study (“token disclosure”), ARDs can typically only include generic information (“type disclosure”). The introduction of ARDs could thus establish a double standard in the sense that within the context of ARDs, type disclosure would be considered sufficient, while beyond this context, token disclosure would remain necessary.
LB  - PUB:(DE-HGF)16
C6  - 34627232
UR  - <Go to ISI:>//WOS:000705226900001
DO  - DOI:10.1186/s12910-021-00704-5
UR  - https://juser.fz-juelich.de/record/901908
ER  -